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How Can I Help?

  • May 9
  • 3 min read

Updated: May 20

This is just the beginnng and treatment hasn't even yet started. Right now, thankfully my body is healthy other than the presence of this mass, fatigue and some increasing nausea. The fatigue and nausea is going to be the most debilitating side effects to come.


Sleepy Summit Puppy


This isn't a sprint, it's going to be a marathon.


If you read my treatment plan page, you might be as surprised as I am to have learned, it's 16 scheduled treatment days of chemo and immune therapy over the next 6 months, which gets me to November. The days stack up fast!


I am certainly going to need your help, it just may not be immediately.


Treatment Schedule & Calendar


The first line of treatment chemo and immune-therapy details are on a differnet page, here is what infusions and less ideal days might be expected. Some sail through chemo with normalcy, and some really struggle with the possible anemia, fatigue and nausea on Days 3, 4, 5 after the infusion noted as the three day sets here. I hope to live and work as normally as possible, but could use your help and companionship an afternoon or evening along the way! We will still have fun on my good days!


Helper Days!

Program

What’s Needed?

Note: I am managing the schedule instead of a calendar of auto sign-ups here, each day is going to be different, additional personal schedules, so if there is a day or task you want to provide, send me a message personally or through the contact me page here. 

With much gratitude and thanks!

May 11

Port Placement - Sacramento

 

Infusion:  May 19

Chemo Infusion – Sutter Cancer Ctr, Roseville

This Date is Covered

May 21, Thurs

May 22, Fri

May 23, Sat

Side effects days at home

Helper day at home, visit, light meals, well being check-ins. Pick a day or afternoon, evening, hang out.

May 26

Chemo Infusion – Sutter Cancer Ctr, Roseville

This Date is Covered

May 28, Thurs

May 29, Fri

May 30, Sat

 

Side effects days at home

Helper day at home, visit, light meals, well being check-ins. Pick a day or afternoon, evening, hang out.

 

May 30th is covered, gonna try to have fun on my birthday!

Monday, June 1

Surgeons Consult, SF

I hope I am okay to journey on my own, but who wants to go to SF for the night.  I am getting a hotel for June 1st and 2nd nd after the surgeons appt at 3:30 appt off Van Ness in SF.

Tues, June 9

Chemo Infusion – Sutter Cancer Ctr, Roseville

Need a Ride to and From, or Drop Off, Lunch dates, Play a Game are welcome for long infusion days!

June 11, Thurs

June 12, Fri

June 13, Sat

Side effects days at home

Helper day at home, visit, light meals, well being check-ins. Pick a day or afternoon, evening, hang out.

Tues, June 16th

Chemo Infusion – Sutter Cancer Ctr, Roseville

 

June 18, Thurs

June 19, Fri

June 20, Sat

Side effects days at home

Helper day at home, visit, light meals, well being check-ins. Pick a day or afternoon, evening, hang out.


June 20th is covered!

Physical Support


Cholangiocarcinoma treatment can be physically impactful and demanding. I may experience severe fatigue, anemia and a drop in immune function.


Help with Daily Tasks


Offer to help with everyday chores such as cooking, light cleaning, or grocery shopping . I won't need this assistance if I am feeling good, but will need help with the most simple things on my tough days.


Accompany To Infusion Appointments or Hard Days that Follow


Going to medical infusion days will be long, in a chair for 6-7 hours.

Accompanyment at home when there are days I can't do much for myself if the fatigue gets overwhelming.


Staying Active


Encouraging nutritious meals and gentle exercise with a light walk, if appropriate. Cooking or having healthy meals together could also be really nice

Playing a game or watching a movie together.



 
 
 

1 Comment


CMR
2 days ago

I love you. Grandma R

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