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How Can I Help?

  • May 9
  • 3 min read

Updated the schedule page on Sunday 7/5/2026


I am now getting adjusted to chemo days, side effect days, and how this path is feeling so far. I just had Infusion No. 5 of 16 this last Tuesday, June 30th. As the schedule will show, I will be halfway through this set of infusions by the end of July! Wow! I know that Tuesdays are long days with infusions and couldn't do it with the rides down and back home! I am post infusion wired on Wednesdays with some insomnia, get some errands and work done Wed and half of Thurs, but mid-way through Thursdays I have to turn off the laptop, words and making sense can't be trusted...I'm off to see Oz as I really begin to fade into the fatigue and woozies through mid-Sunday.


Two weeks of those in a row, and then I get a week off, and the cycle goes again.


Sleepy Summit Puppy


This isn't a sprint, it's going to be a marathon.


Treatment Schedule & Calendar


The first line of treatment chemo and immune-therapy details are on a different page, here is what infusions and less ideal days might be expected. Some sail through chemo with normalcy, and some really struggle with the possible anemia, fatigue and nausea on Days 3, 4, 5 after the infusion noted as the three day sets here. I hope to live and work as normally as possible, but could use your help and companionship an afternoon or evening along the way! We will still have fun on my good days!


Helper Days!

Program

What’s Needed?

Note: I am managing the schedule instead of a calendar of auto sign-ups here, each day is going to be different, additional personal schedules, so if there is a day or task you want to help, send me a message personally or through the contact me page here. 

With much gratitude and thanks!

Tues, June 30th

Chemo Infusion - #5 of 16

 Infusion day is covered

Welcome check ins and home visits Fridays and Saturdays, side effect, low energy days

Tues, July 7

Chemo Infusion – #6 of 16

Infusion day is covered

Welcome check ins and home visits Fridays and Saturdays, side effect, low energy days

Tues, July 21st

Chemo Infusion - #7 of 16

Infusion day is covered

Welcome check ins and home visits Fridays and Saturdays, side effect, low energy days

Tues, July 28th

Chemo Infusion - #8 of 16

(50% of the way)

Ride down or ride up is welcome!

Welcome check ins and home visits Fridays and Saturdays, side effect, low energy days

Physical Support


Cholangiocarcinoma treatment can be physically impactful and demanding. I may experience severe fatigue, anemia and a drop in immune function.


Help with Daily Tasks


Offer to help with everyday chores such as cooking, light cleaning, or grocery shopping . I won't need this assistance if I am feeling good, but will need help with the most simple things on my tough days.


Accompany To Infusion Appointments or Hard Days that Follow


Going to medical infusion days will be long, in a chair for 6-7 hours. I have had the good fortune of getting separate rides down, versus a ride back home. Accompaniment at home when there are days I can't do much for myself as the fatigue gets overwhelming.


Staying Active


Encouraging nutritious meals and gentle exercise with a light walk, if appropriate. Cooking or having healthy meals together could also be really nice

Playing a game, crafting a puzzle, or watching a movie together.



 
 
 

1 Comment


CMR
Jun 28

I love you. Grandma R

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